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Homepage  >  Non-Profit & Charitable Organizations  > 

Cystinosis Research Network

Company Name

Cystinosis Research Network

Main Industry

Non-Profit & Charitable Organizations, Organizations

Website

www.cystinosis.org

Cystinosis Research Network Profile and History

The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. We are a private, nonprofit 501(c)(3) corporation, Federal Tax ID 04-3323789. CRN began with a vision in 1996. The vision of one family, which gradually grew to include hundreds m ore. As our network of families grew, we began to see the need to do more. Concerned for the future of those living with this disease, we realized that if we didnt step up to the plate and set that agenda, no one else was going to. With the guidance and advice of our medical and scientific community the Cystinosis Research Network was launched. In the past two decades CRN has grown from a kitchen table rare disease group of parents to an internationally recognized rare disease advocacy organization which has funded millions of dollars in research, provided family support including sponsorship of 8 biennial family conferences around the U.S., and educated the public and professional communities about cystinosis via access to standards of care, brochures and sponsorship and exhibition in professional conferences around the world. The CRNs vision is the acceleration of the discovery of a cure, development of improved treatments and enhancement of quality of life for those with cystinosis. Our commitment to our community lies in our tireless efforts to provide family assistance through facilitating several support groups as well as hosting a family conference every other year. At this conference we bring families and the medical community together in hopes to accelerate the accomplishment of our stated goals and objectives. Dear Cystinosis, You may have made me who I am todaybut I wont let you hold me back.

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Contact Information

Headquarters

212 Dickinson St Rm 213, San Diego, California, 92103, United States

(619) 543-5260

Revenue

$870 K

Employees

6

Founded

1996

Cystinosis Research Network Executive Team & Key Decision Makers

Name & TitleContact Info
Clinton Moore
Clinton Moore

President

Email

Phone

Reveal for Free

Kristina Sevel
Kristina Sevel

Vice President, Research

Email

Phone

Reveal for Free

José T. Morales
José T. Morales

Vice President, Development

Email

Phone

Reveal for Free

Christy Greeley
Christy Greeley

Vice President, Research

Email

Phone

Reveal for Free

Julia Ploeg
Julia Ploeg

Manager, Office River (Chicago, North)

Email

Phone

Reveal for Free

Terri Schleuder
Terri Schleuder

Board Member

Email

Phone

Reveal for Free

Kevin McCalla
Kevin McCalla

Comics Creator

Email

Phone

Reveal for Free

Recently Updated Team Members

Name & TitleContact Info
Clinton Moore
Clinton Moore

President

Email

Phone

Reveal for Free

Kristina Sevel
Kristina Sevel

Vice President, Research

Email

Phone

Reveal for Free

Kevin McCalla
Kevin McCalla

Comics Creator

Email

Phone

Reveal for Free

Top Cystinosis Research Network Integrations and Technologies

Here's a list of some of the top trending technologies and APIs used by Cystinosis Research Network.

Frameworks and Libraries

(5 Technologies)

Web Analytics

(2 Technologies)

Programming Languages

(2 Technologies)

Mapping and GIS

(2 Technologies)

Other Web Tools and Plugins

(2 Technologies)

Cystinosis Research Network Email Formats

ParameterSample EmailPercentage

Cystinosis Research Network Top Competitors

CompanyEmployeesRevenueTop technologies
Cystinosis Research Foundation

Cystinosis Research Foundation

10$4.5 M
MIT Enterprise Forum of the Northwest

MIT Enterprise Forum of the Northwest

28$2.8 M
Hypoparathyroidism Association Inc

Hypoparathyroidism Association Inc

12$2 M
Wisconsin Society for Ornithology Inc

Wisconsin Society for Ornithology Inc

25$3.7 M
K-9 PALS Inc

K-9 PALS Inc

13$1.6 M

What is Cystinosis Research Network revenue?

Cystinosis Research Network revenue is $870 K

How many employees does Cystinosis Research Network have?

Cystinosis Research Network has 6 employees

Where is Cystinosis Research Network headquarters located?

Cystinosis Research Network headquarters are located in 212 Dickinson St Rm 213, San Diego, California, 92103, United States

What are Cystinosis Research Network’s primary industries?

Cystinosis Research Network’s main industries are: Non-Profit & Charitable Organizations, Organizations, Business ServicesResearch & Development...See More

What are some additional names or alternative spellings that users use while searching for Cystinosis Research Network?

Cystinosis Research Network appears in search results as Cystinosis Research Network, Cystinosis Research Network Inc, CystinosisCystinosisResearch xts, Cystinosis CRN...See More